As many of my blog readers know, I have PCOS.
An invisible illness that a lot of times goes un-diagnosed. PCOS is extremely hard on a woman, physically and mentally, and can prove to be difficult for her family as well. 8 years ago this month I was diagnosed, after almost a year of trying to conceive our first child and for these 8 years its been an incredible journey.
Over the past 8 years I have slowly begun to figure things out with my body and health. Its been a rocky road getting here, to the point I am now, feeling much more knowledgeable and confident with these illnesses I have and will have for the rest of my life. Almost 2 years ago, I made the decision to have a hysterectomy. Although I knew it wouldn’t cure the crazy amounts of pain, discomfort and everything that goes with it; this was a huge step…
Ive had a lot of days that have been quite dark… living with pain, living with invisible illnesses is difficult, requires a lot of planning, a lot of time, a lot of self control and self discipline. All of which can be quite difficult with two kids very close in age, working full time and managing home life.
My journey has been interesting, as I learn about my body, my illnesses and how to properly manage. Since having my hysterectomy the pain has gotten better. The pain has gotten better, it has not stopped altogether, at times now the PCOS and Endometriosis has been flaring up quite badly and the intense paid has begun coming back – along with the pain comes feeling incredibly irritated, agitated and high levels of anxiety.
Some days are not easy. Its even harder when I get frustrated with myself and fall off the wagon with my eating.
I KNOW I cannot eat white flour and white sugar, I know that. Its SO hard. SO hard. I can eat whole grains and choose to stay away from sugar. However eating out can be so incredibly hard. We have been enjoying some awesome family time this summer, which has meant eating out more, I have become far to relaxed on groceries and cooking at home due to the crazy heat and opted for the easy, ok lazy way… and its affected me… badly.
Ive learned that not only do I need to avoid white flour and sugar for PCOS but also for RLS, Restless Leg Syndrome… I know, seriously!? Enough already.
Having various issues going on its sometimes hard to pin point certain things and over these past 8 years, moreso over the past I would say 3, things are falling more into place, I am understanding my body better and as our kids are growing its becoming easier for me to give myself the time I need to ensure I am healthy. It really is hard when someday’s these illnesses leave you with zero motivation, or being crazy tired from being up all night not able to sleep or in pain.
So I need to embrace it and move forward. Interestingly enough, white flour and sugar is a huge trigger of RLS – along with lack of sleep, stress – all of which gets worse when I have pain or cannot sleep. Exercise, especially leg exercises are excellent – good because I enjoy that.
I know this is a life long journey for me, also a large part of why I made the decision to keep photography for me and my family’s enjoyment – which I am having an absolute blast with this summer!!! I know I am not alone in this fight, even though some days it certainly feels like it. I am so thankful for the support of my family. As I learn more, they are even more supportive. Ironically a few of us have the pleasure of experiencing RLS – its not fun!
“Just keep swimming…” Dory
Tomorrow is a brand new day, with brand new opportunities.